It all started in July 2024 when my daughter had a cold allergy which turned into some sort of paralysis within a period of 4 months.

We spent months in hospitals seeing different specialist without getting a diagnosis, all they kept on saying is that its all in her head, while her health was detoriating each day, pains everywhere, blurry vision, leaky gut, tremors.

We fint sleep for months until we got a doctor in India who had an idea of what she suffered from.

So i decided to do different fundraisers to ger funds for treatment and went to India, within 3 days it was confirmed she has Polymyositis, an autoimmune that gives inflammation to all muscles.

Because of this whole journey almost one year later is why i decided to raise awareness to help other patients like my daughter and assist them get proper dianosis, i opened a Facebook group called Autoimmune diseases support group Kenya.

Many people have reaches out to learn more and i also offer consultation for patients and advice on diets and herbs to use for flares and inflammation. I also offer counselling services to them. I normally give speeches about autoimmune diseases and am working with different organisations to help spread awareness including Disability inclusion groups, Rare diseases Kenya and Myositis Africa group.

I also happened to lose my job in the process, so i have been looking for people or organisations that can help me get funds to spread awareness and do research and help get a workshop to help this community better.

I hope i can get the assitance that i truly need to make this work and connect with others that have same conditions or practitioners that understand it better. My facebook group link is

https://www.facebook.com/share/g/18BJQtXyb2/

Help me, do this for these patients plus my daughter, who normally require alot of finances for medication, supplements, consultations, procedures, counselling and special diets.

I will share a well detailed proposal to anyone willing to assist us. Let me know also where i can assist.

My email is asaetwa@gmail.com

My whatsapp is +254720560328.

Hoping to get a positive feedback from this community. Thanks in advance.

Kind regards,

SAETWA SAITOTI

NAIROBI

KENYA.